Caregiving for the severely autistic is not about reaching a perfect finish line.

What is not always shared is what is constantly being managed behind the scenes.

A look at the “spellers” approach, balancing hope with what we actually see in real-life communication.

I've been invited to be a guest on the Let's Plant Houses podcast with Wendy Ernzen.

My strength would need to grow, and my intuition would be essential as I navigated the unknown.

Witnessing my intuition take control, guiding how I managed my thoughts and concerns, filled me with a new strength.

As much as I battled to convince myself all was fine, the feeling that something was off lingered.

Suddenly it occurred to me that something was seriously wrong, as I noticed her eyes were no longer finding mine.

Of the many revelations we discover, one of the most profound is a new purpose and role for our life, guiding us in ways we never expected.

In these moments, my world narrows to the singular focus of alleviating her suffering.

to unveil the raw emotions from relentless battles and the remarkable victories that define the caregiver's role.

Clear and ongoing communication between parents and school staff is crucial for advocating for the needs of nonverbal autistic children.

I never saw Linda and her disability as a punishment or curse but rather an opportunity and challenge to step into my power.

Caring for the suffering while the heart is slowly breaking is the hardest part of a caregiver’s journey.

This new reality is overwhelming and requires strength, tenacity and skill to manage.

Having a child with severe autism and intellectual disability isn’t hoped for or planned on, but can be understood and accepted as a meaning